One year ago today, I found out I carry a genetic mutation linked to ALS and FTD. A moment like that changes the way you see your future, your time, and the people you love. This past year has been a mix of fear, gratitude, learning, and purpose. I’ve learned more about ALS than I ever imagined, connected with an incredible community, and realized how many families are facing this disease every single day. Living with this knowledge isn’t easy, but it has also made me appreciate the present more
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